After childhood cancer: Understanding survivorship

Posted on July 24, 2017

In the past, treatment of childhood cancer was solely focused on curing the cancer. But today, with more and more pediatric patients overcoming cancer, there’s a new focus: survivorship.

The numbers are astounding. According to the National Cancer Institute, there are now more than 15.5 million cancer survivors living in the United States — and more than 400,000 of those survivors were first diagnosed as children.

Advances in cancer treatment have changed the face of pediatric cancer. Today, more than 80 percent of kids diagnosed with cancer are alive at least five years after diagnosis.

This is a phenomenon that Manoo Bhakta, MD, pediatric hematologist/oncologist at Children’s Hospital at Erlanger, has seen first-hand. Dr. Bhakta has spent the majority of his 30+ year career at Children’s Hospital at Erlanger.

“It’s an exciting time for the field of pediatric cancer,” Dr. Bhakta says. “It’s always evolving.”

A look at what’s changed

Many advancements have played a role in increasing the number of pediatric cancer survivors, but there are three significant changes, according to Dr. Bhakta:

  • More aggressive treatment. “We’ve gotten more aggressive with treatment because we have better support of care,” Dr. Bhakta says. “Here at Children’s Hospital at Erlanger, we have many subspecialists who are available to aid in treatment and the monitoring of any complications a child might experience.”
  • Improved medications. “A small number of cancer survivors can attribute success to the help of new cancer-fighting drugs,” Dr. Bhakta says. “But through improved medications like antibiotics, we’re able to help children recover faster from illnesses.”
  • More attention paid to the negative effects of treatment. “While working on advancing treatment, we’re also identifying the negative impacts of treatments,” Dr. Bhakta says. “This allows us to learn how to be more aggressive with treatment — but in a way that’s not as harsh on the body.”

What that means for survivors now…

In the 1950s, fewer than 5 percent of pediatric cancer patients survived. In the decades since, advancements have enabled more patients to survive — and survive for longer periods of time.

Cancer survivors face a unique set of challenges as they age, both in childhood and as adults. While undergoing treatment, children miss out on normal, everyday experiences. They have health concerns such as delayed puberty, a higher risk of obesity and neuropathy in the years following treatment.

As they age into adulthood, they face an increased risk of certain health conditions. That’s led to a need for specialized survivorship care.

“Adults who are now 30 to 50 years of age who’ve survived cancer since the 1980s must alter their lifestyle to healthy living,” Dr. Bhakta says. “We recommend counseling and monitoring of the heart, lungs and kidneys.

…and in the future

Childhood cancer survivors have their entire lives ahead of them. Through the survivorship clinic at Children’s Hospital at Erlanger, Dr. Bhakta and team are able to follow patients into adulthood, celebrating everything from No More Chemo Parties to graduations, marriages and other milestones, all while continuing to learn more about minimizing the impact of childhood cancer.

Mindy Sanders’ son Colin is a part of this survivorship clinic. Find out what survivorship care at Children’s Hospital at Erlanger has meant for Colin and for their entire family.

“You might think that patients ‘age out’ of our care. But we don’t turn patients away once they turn 18, just because we’re a children’s hospital. We continue to see them and care for them even into old age, working with their primary care physicians and specialists. It doesn’t matter where patients were treated for their cancer — we welcome them.”

If you or someone you know could benefit from childhood cancer survivorship care, call 423-778-7289 for more information.

4 Responses to “After childhood cancer: Understanding survivorship”

July 25, 2017 at 10:11 am, Marilyn Houser said:

The program has been very helpful for my daughter Brittany Houser and myself. I can say one thing, the doctors and staff has always been there for us and still today after 8 1/2 years off chemo. Love our clinic and hospital.

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July 25, 2017 at 6:30 pm, erlangerhealth said:

Thank you for sharing this, Marilyn. We love to hear about stories like your daughter’s.

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August 21, 2017 at 8:03 pm, Lisa Turner said:

Great article! My daughter is a current patient at Children’s Hospital at Erlanger and it is a wonderful, caring place. Even though we are going through a very difficult experience there is no place else we would rather be. We love all our doctors and nurses and all of the staff both in the clinic and on the floor. We are grateful for them and the caring and compassion they have given our whole family.

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August 22, 2017 at 10:56 am, erlangerhealth said:

Thank you so much for taking the time to share this with us, Lisa! We are delighted that your daughter’s experience has been positive for both her and you.

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